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MONTHLY FEATURE

Paving the Road for 2025: HAP Successfully Organizes Stakeholder Consultation on Government-Funded Hemophilia Treatment

Under the powerful theme “One Voice, One Goal: Access to Care for All,” Hemophilia Advocates-Philippines (HAP) gathered key stakeholders from government agencies, hospitals, policymakers, medical societies, and local patient organizations last January 9 for a collaborative consultation aimed at improving healthcare access for Filipinos living with hemophilia.

Hemophilia Community Updates

What is HAP?

We are registered with the Securities and Exchange Commission as non-stock, non-profit organization. Our main objective is to provide immediate assistance to our members who are experiencing life-threatening bleeds.

We receive humanitarian donation of anti-hemophilic Factor concentrates from non-profit organizations abroad and we distribute these for free to patients with life-threatening and limb-threatening bleeds.

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What are bleeding disorders?

Bleeding disorders are a group of conditions that result when the blood cannot clot properly. People with bleeding disorders either lacks or has defective proteins called factors that bind together to form clots.

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Hemophilia in The Philippines

Majority of Filipinos with bleeding disorders live below poverty line (Around US$233/month income or less). Many of them either have limited or no access at all to medicines mainly because of poverty and lack of education (or lack of awareness on their condition)

Very few hospitals have the capability to handle patients with bleeding disorders. Hospitals that are properly equipped to treat people with bleeding disorders are mostly based in urban centers like Metro Manila, Cebu and Davao. Worse, they are mostly private hospitals that are not affordable to majority of the patients.