HAP Programs
Encourage the creation of chapters in different provinces. Lobby with government for the implementation and enactment of government-assisted programs for hemophilia and related bleeding disorders Conduct awareness, information drives and media engagement.
Lobbying and Advocacy
Bleeding Disorders Standard of Care Bill
Legal staff of Sen. Joel Villanueva met with HAP leaders to discuss the plan of action for the passage of Hemophilia Bill.
Rep. Alfred Vargas filed the Congress counterpart of the Bleeding Disorders Standards of Care Bill (House Bill 5355) in March 2017. HAP has been doing room to room campaign among the 294 members of Congress to ask for support on the passage of the bill.
AP meetings with Presidential Spokesperson Harry Roque and Health Sec. Francisco Duque to discuss about Hemophilia concerns.
Inclusion in the Z Benefit Package (Catastrophic Diseases Category)
Partnerships with medical organizations
Media partnerships and awareness campaigns
MEDIA ENGAGEMENT
We understand the role of Media in raising awareness for hemophilia and other bleeding disorders. Thus, we always look for opportunity to engage the media.
Psycho-social Support
Women’s Group (HAPpy Momshies)
Men’s Group (HeMen)
Youth Group (#Power)
Health & Wellness
Provision of factor concentrates
““My whole family and I are
grateful to Hemophilia Advocates-
Philippines and Project SHARE.
If not for your help, the pseudo
tumor on my right thigh would
not have been removed. If I
didn’t undergo operation to
remove the pseudo-tumor, I
would still have been suffering
from so much pain right now.””
Patient Education
Patients Education Program is aimed at fostering deeper understanding about hemophilia among PWHs, parents and caregivers. In 2017, we were able to invite two special guests to give inspiration – Dr. Pedro Sanchez from the Hemophilia Foundation of Southern California (July). Dr. Sanchez is a respected pediatrician and geneticist based in Los Angeles, California, who has a 3 year old son with hemophilia. Former Senator Tessie Aquino-Oreta graced the October PEP and shared about her own journey with cancer.
Referrals
Livelihood and Economic Empowerment
Micro-enterprise Grants
Noemi Dampitan, mother of 3-year-old Carl Dampitan who has severe Hemophilia A, became the first recipient of HAP’s livelihood program. HAP donated a brand new sewing machine to Noemi to start her home-based business.
Financial Assistance/ Sponsorships
Save One Life (Massachusetts, USA) provides financial assistance to some members in the form of sponsorships (around $240/annually), micro-enterprise Grants (up to $1,000) and scholarships (up to $1,000/year)
Livelihood Programs/Scholarships
HAP partnered with another non profit organization, Virtualahan, in providing online training to our members. In it’s Batch 19 of trainees, four members of HAP qualified for the 6-week intensive training.
The Good Stuff
The Good Stuff is a line of environment-friendly cleaning products made by members of HAP. This is one of the livelihood projects of HAP to help its members augment their income. Members are trained to do produce these organic products. HAP markets the products to its corporate network.
Other Programs
Leadership Trainings
HAP endeavors to build the capacity of hemophilia leaders
Monthly Meetings
Monthly meetings are being held at the Philippine Children’s Medical Center. Multi-disciplinary doctors are invited to talk about proper hemophilia care. The first part of the program is dedicated to educating persons with hemophilia/bleeding disorders and their caregivers.
International Partnerships
Project Share
Through donations from Project SHARE, HAP was able respond directly to 1,288 cases in 2017 and distributed close to 7-million IUs of anti-hemophilic factor concentrates. HAP President Andrea Trinidad Echavez visited Project SHARE office in Georgetown, Massachusetts in Sept. 2017. Below, Andrea with Project SHARE Founder Laurie Kelley and Program Director Zoraida Rosado.
Save One Life
HAP formally got enlisted as project partner of SOL in 2017. SOL sponsored HAP’s Summer Camp 2017. In 2016, SOL executive director Martha Hopewell came to the Philippines and met with HAP founders. HAP President Andrea Trinidad Echavez visited SOL office in Georgetown, Massachusetts in Sept 2017.
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